Might is Lyme Illness Consciousness Month, and over on Instagram, I have been sharing some tidbits about Lyme illness that a whole lot of people do not know (I actually did not earlier than I got here down with it). Lyme is a illness that most individuals have heard of however is extremely misunderstood.
Being a Lyme Illness sufferer is exhausting due to the illness itself, but in addition due to the unimaginable quantity of advocacy work it’s a must to do for your self and your illness. There are such a lot of inquiries to reply and misconceptions to battle!
Since I used to be recognized six months in the past, I have been amassing essentially the most continuously requested questions I get and figured I might pull them collectively into one submit to complete up the month of Might. Hopefully this submit will assist clear up some questions, and if you need to know extra, I extremely suggest trying out the documentary Below Our Pores and skin and the sequel, Below Our Pores and skin 2, to get a very good overview of why Lyme is so controversial and what it is wish to dwell with it and deal with it.
1. The whole lot about Lyme Illness is controversial.
That is most likely the very first thing you need to learn about Lyme. The whole lot (sure EVERYTHING) about it’s controversial. I’ve had a number of well being care professionals say to me that Lyme is *the* most hotly debated matter within the medical neighborhood proper now. We’ll cowl a few of why it is so controversial later on this submit, however what it’s essential to know is that this: all this controversy hurts precisely one group of individuals—the sufferers. It makes navigating the whole course of—from getting recognized to affording remedy—100x tougher for sick individuals. Which is simply…improper.
2. There isn’t any dependable blood check for Lyme Illness.
That is perhaps a very powerful piece of knowledge I may give you, and one thing I want I knew earlier than I received sick: there may be NO dependable blood check for Lyme Illness. A unfavourable Lyme Illness check doesn’t imply you do not have Lyme Illness. I ought to know– I had two negatives earlier than I used to be recognized.
If you happen to stroll into your loved ones physician and ask for a Lyme check, they’re going to most likely provide the normal check that misses roughly 55% of circumstances of Lyme. And worst of all, many well being care professionals do not know that it’s this inaccurate. There are extra delicate exams on the market which are extra correct, however they don’t seem to be good and are extraordinarily costly (and infrequently lined by insurance coverage).
Lyme, at its coronary heart, is an immune-suppressor. The Lyme blood exams are testing for Lyme antibodies in your system. If Lyme is suppressing your immune system sufficient that you simply aren’t producing the antibodies—guess what? You get a unfavourable check. Many individuals do not check constructive for Lyme till *after* they’ve began remedy.
This is the reason the overwhelming majority of Lyme medical doctors contemplate Lyme illness to be a scientific prognosis—based mostly off of signs and historical past—not a laboratory prognosis based mostly off check outcomes.
three. Testing a tick for Lyme is simpler, extra dependable, and extra inexpensive than testing a human.
If you happen to discover a tick that has bitten you, SAVE IT. If you happen to begin to present any signs, you may then mail a tick into a good lab for testing (I like to make use of this non-profit service from the College of Massachusetts). It is a lot simpler, quicker, extra dependable, and extra inexpensive to check a tick versus testing a human.
Simply this previous week, we mailed in a tick that we discovered beneath Juni’s earlobe. The chew was trying a little bit bit off, and I figured $50 to get the tick examined was value it to not fear. The report was texted to me two days later and it was all unfavourable. Learn the submit »
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